Happy Spring

Strolling in the springtime

Strolling in the springtime

Lily and I are so excited that the flowers are starting to bloom!  It fills us both with so much excitement and hope.

Here are a few Rett related things that have also been inspirational to me over the past few months that I wanted to share:

  •  Moving video about living with a child with Rett Syndrome
  • The Today Show piece on Rett Syndrome
  • The scientist who discovered the genetic marker for Rett Syndrome is coming to NYC (and I’m already signed up to see her speak)
  • An upcoming Rett fundraiser in NYC where I’ll get a chance to catch up with some of my awesome Rett momma friends (and for those of you in the NY area – would love for you to join me!)
  • An announcement from RSRT about the $9mm that was awarded last year to research (psst some Rett momma friends and I are getting together to brainstorm on how we can double that number for 2016)

I hope to see some of you at the fundraising event next month!

Love,

C and L

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