A correspondence I never wanted to write

Hi Dr. Djukic,

I hope you’re well.

I wanted to check in with you because a few things have been going on with Lily lately. And I think we may need to schedule an EEG to have her monitored.

Two weeks ago she had what I would describe as three Rett episodes in a row. She was present but shaking and frozen uncontrollably, at the same time. If that makes sense.

Last week I believe she had two seizures and they were very close to each other in timing. These look different from the Rett episodes in that Lily wasn’t as present and she was foaming and spitting at the mouth a bit.

Please let me know how you would like to proceed.

Thank you.

Christine Salerno

4 thoughts on “A correspondence I never wanted to write”

So sorry that you are faced with this. Positive thoughts the EEG shows the are not seizures. Hugs.

Prayers coming your way!

Sorry to read this Christine! We just went thru the extended EEG at Montefiore and it def provided us with some good information. I know all too well how hard this is for both you and Lily!