The Impact of Hand Function on Cognitive Development and other things I wish I never knew

I wish I didn’t know:

  • How to apply for a disability parking permit for a child (hint: it’s not easy)
  • That there are no handicapped parking spots in the city of New York
  • What EI, CPSE, CSE, ACC, OWPDD, EEG, and EKG stand for
  • How to fill a syringe with medicine and administer it on your child
  • What a seizure looks like
  • That there was such a thing as a swallow study
  • What depecote, acth, keppra are
  • The difference between grand mal, petit mal and absence seizures
  • How important the MECP2 gene is on neurological function and development
  • That there is such a thing as a car seat for a disabled child and that it costs $1200
  • What orphan drug status is
  • That your heart can break into a million pieces every day but then one smile from one amazing little person can make it all better
  • How to pack for a 48 hour long hospital visit for two people (one of them being under the age of 5)
  • The importance of proprioceptive and vestibular function
  • Bruxism
  • Apraxia
  • Rett Syndrome.

But if knowing all of the above means to know this kid, then I am in 100%.

Lily at CHAM March 2015

 

 

 

 

 

 

 

 

 

 

 

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3 thoughts on “The Impact of Hand Function on Cognitive Development and other things I wish I never knew

  1. Wish we lived closer. I’m here for both of you Chrissy. Thoughts and prayers always sent your way. Love u soooo mucg

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