Lily’s a featured angel on the Int’l Rett Syndrome Foundation site

She’s going to be 3 years old and has had 3 different diagnoses.  The last one (Rett Syndrome) combines the first two (autism and ESES, pre-epileptic activity) and adds a few more.  But regardless…. she’s still the best.  Ever.

We are heading to the hospital tomorrow and will be there for her birthday, but will celebrate it in style.  As always.

Check out her profile here:
https://www.rettsyndrome.org/news-and-media/irsf-features/featured-angel

And there is NO need for gifts or anything of the sort for her birthday.  If you feel so moved to do something, you can always make a donation (large or small) to the IRSF.  They’re amazing and have been so helpful for us these past two weeks.

https://www.rettsyndrome.org/make-a-difference/donate-now/donate

Love,
C and L

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