I know what you’re thinking… you’ve not heard from me in ages and then within 24 hours, I post three things.
Well they say that all (good or bad? I can’t remember the saying) things come in three so this will likely be my last one for a while. And it’s really just a repost of what another wise momma wrote. It resonated with me so much that I wanted to share it here.
Thank you momma-warrior Joanne for sharing your insights, specifically the ones on bizarre symptoms and respite. She has nailed it with her commentary on what Rett Syndrome has taught her. Like I said in my earlier post, it’s a hell of a disorder.

At school earlier today playing with bubbles!
A few weeks ago, Lily lost a tooth and got $5 from the tooth fairy. She told me and Elaine (her speech therapist) exactly what she wanted to do with this money: buy an orange watch! You see, she’s learning to tell time, something that she told us that she wanted to do, of her own volition. A watch is the perfect accompaniment to this activity, no? She’s so proud of this orange watch.