Lily’s been talking about going on the subway for a while. The other day, she mentioned that she wanted to go at 11pm with Stephen. 😳

I told her that 11pm was too late (who stays up that late anyway?) and unfortunately Stephen wasn’t able to come but would she want to go with me on a Saturday afternoon?

She was more than happy to oblige.  So we took the train to Columbus Circle, where she helped me find the elevator exit (check out the video). We got out, did some window shopping and had a blast.  

But the trip tuckered her out. It’s been a rough few weeks as we’ve been struggling with seizure management- she’s been averaging @ one a day. 

Even with all the setbacks, none of it stops her from living and laughing. 

She is truly an amazing human being.