Six years ago… she needed to be harnessed onto the treadmill to be able to walk. She was having dozens of seizure-like episodes daily. She lost her appetite/ability to eat. Everything deteriorated. I couldn’t dare articulate this back then, but I wasn’t sure she’d survive. I wasn’t sure I’d survive.
The recovery was slow. She weighed 40 pounds for almost 4 years. I didn’t know if she’d grow again.
Now we are in a place where she keeps growing out of her clothes. It’s always the last thing I think of – that she’s grown. I was blaming the clothes dryer for a while but then remembered that kids grow. Kids should grow.
Earlier this week in physical therapy, Lily did 10 minutes on the treadmill at speed 3. A far cry from where she was six years ago.
There is so much people take for granted but I marvel at every pound gained. Every new skill attained.
This is Rett Syndrome.