Faith in humanity

This morning Lily, Urzsula (one of her beloved caregivers) and I met our cousins the Darlings at the Children’s Museum. We had a blast, especially at the dance party!

Everyone at the museum was super accommodating to Lily; they even let us choose most of the dance music. Watching Lily run around with a big smile on her face – enjoying the music, the people, the mirrors – was such a relief. You see, Rett Syndrome has been very unkind to her lately. In the mornings, she can barely walk. And she wakes up screaming and shaking and scared multiple times throughout the night.

At the museum today it was nice to have a flash of an ‘almost normal’ existence – for both of us. I don’t take these good days for granted.

Afterwards we went around the corner to Fred’s restaurant for lunch. It was a busy day on the streets of Manhattan and people were overflowing onto the sidewalk waiting for a table. The host (who we learned later has a son with Downs Syndrome) saw the six of us coming and said ‘we’ve got a table inside for you’. They ushered us in and we had a fun and tasty lunch. When I asked for the check, I got this instead:

I saw your family altogether in the Children’s Museum and was so touched by the love and affection and energy you all have. I have a cousin with a daughter with similar difficulties and know what effort it takes and the constant worries you must have.

I hope it all goes well for you. Have a great Sunday!

I have no idea who this kind stranger was. All the adults around the table (especially me) were floored. What a beautiful and thoughtful note. And what an amazing and generous gesture.

 

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7 thoughts on “Faith in humanity

  1. What a touching and heartwarming story!
    Ed says he thinks this was.a.message of encouragement sent by God!
    May you have more days like this!
    I love You! Auntie Bernice

  2. That was a really nice gesture and just what you need to restore your faith in humanity!

    Big hug and kisses to you both!

    Love wags

    Sent afrom my iPhone

    >

  3. Hey Christine, such a lovely thing to do on such a lovely day for such a wonderful Mom and her awesome little girl. Wishing only the best for you both! Miss you, hope spring comes soon so you can enjoy more fun things in the great outdoors of NYC!

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