On February 8th, Lily is going to be six years old. In honor of her upcoming birthday and my unwavering desire to obliterate Rett Syndrome, I will match up to a total of $1500 donated to her RettGive.org page between today and the 8th.
I’m so proud of this kid – she literally smiles in the face of adversity. I see it every day when she’s struggling to stand, walk or breathe. I see how hard she works to do – well – almost anything right now. I pray for the day when Rett Syndrome will be just a painful memory.
For those who have already generously donated… from the bottom of my heart, thank you! Your support and love is palpable. For those who’ve not gotten around to it yet, or don’t feel that giving $10 or $20 will make a difference, believe me when I say that every dollar counts.
Lily is the bravest, sweetest, smartest, hardest working almost 6 year old that I know. And I know that one day in the near future she, and her Rett sisters, will be cured. But without funding, it will remain a pipedream.