A (hopefully) brave new world

As most Americans are reeling about the outcome of the presidential elections, the special needs community is taking it particularly hard.   I’ve not been able to put words to my thoughts and fears about Trump being elected.  Thankfully a fellow Rett momma warrior, Lauren Cooper Allen, did just that on Facebook’s Pantsuit Nation site and I just had to share.  You can click here to see the original post if you have a Facebook account and read all the amazing and beautiful responses.  I recommend that you read the responses.  It filled me with hope.

This is my 13 year old daughter Molly. She has Rett Syndrome (RS), a neurological disorder that effects 1 in 10,000 GIRLS and WOMEN worldwide.

Molly cannot walk or talk and often has uncontrolled hand movements much like the ones Donald Trump made fun of and mocked in reporter Serge Kovaleski.

15085596_10211510858434011_5619371133999671014_nI have watched, often silently, as my daughter is stared at. I have watched as people have pointed and spoken in hushed whispers “what is wrong with her?”.

I have spent tireless hours educating others on disability and acceptance, and my fears now have become a hard reality.

Not only does my family face catastrophic cuts to the social service programs that allow
us to care for her at home but I fear that the walls to tolerance and acceptance which we have worked so hard to chip away at are being slowly built back up.

How long before children think it is OK to mock, ignore and marginalize her? How long before she realizes that she is not a valued member of our society?

Here is my plea. If you see a disabled child, please, speak to them, smile at them, let their parents know that you are committed to taking care of the most vulnerable members of our society.

 

❤️

Photo credit: Elise Hanna

#togetherstronger #lovetrumpshate #buildlovenotwalls

 

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One thought on “A (hopefully) brave new world

  1. Chrissy, I may be naive but I have some optimism that his campaign promises will not be met. He is a liar after all. The real damage, as this lady points out, is legitimizing cruelty and arrogance towards the disabled, and all marginalized groups. I hope his advisors knock some sense into him and that Rett children and all children continue to get the support they need.

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