Even though 2014 was the hardest, most challenging year of my life, it was also a beautiful year full of love and giggles. Life can be brutal. But also beautiful. Sometimes at the same time. I choose to focus on the beauty.
2015 will be a year of physical, spiritual, emotional, and financial recovery for me. And relentless research and fundraising for a cure for Rett Syndrome. And lots and lots of giggles.
And now… I want to share some articles I’ve been touched by (it seems that some fellow mommy bloggers have been reading my thoughts)… and some good news about a new legislation which will help me save for Lily’s future….
…I’ve heard people complain about how much their children talk. I have heard any number of similar gripes come out of other parents’ mouths, but I never say, “It could be worse.” That will invite a look of pity, shame, embarrassment, maybe annoyance. But what I wish is that more people in the world would just remember on their own how good they’ve got it. Read more here.
How I Navigate the Stormy Waters of My Daughter’s Diagnosis
I never really know the cause of the storms. Sometimes it’s just seeing the gap grow between her and her similarly aged friends. Sometimes it’s a phone call from a specialist, sometimes it’s making a phone call to a specialist. Sometimes it’s nothing. Read more here.
ABLE Act: For people with disabilities, a tax-free way to save
President Barack Obama on Friday signed into law a bill that will allow families with children with disabilities to save for college and other expenses in tax-deferred accounts. Read more here.
Thank you for supporting me and Lily in this beautiful life.
Happy New Year girls!! To health, strength and peace in abundance!! Lily looks fabulous at brunch!!!!!!