I read the above line while perusing blogs written by people with dis-abilities (primarily autism). I’m always on a quest to better understand my sweetie and what motivates her, what makes her feel comfortable in her own skin, what makes her feel confident.
I remember getting one of the best pieces of advice from Lily’s very first ABA therapist, Ann, shortly after Lily got the autism diagnosis. She told me something along these lines… “Lily needs time to be Lily. If she wants to flap her arms or stim in any other way, give her the freedom to do that. It is a part of her and you want her to feel completely accepted.”
I completely accept my child, stims and all. I see her as an asset – not just to me, but to everyone she touches. She has made my life so much more meaningful. And I’m so very proud of her.
I’m also lucky that she’s surrounded by amazing therapists who see past the Rett and the stims. They all see a smart, sassy little girl with a great sense of humor who loves to be tickled, sung to and danced with. They see a child who is quick to learn, and they realize that there are some days when L just doesn’t have the capacity to do certain things, even though she really, really wants to. I know that one day, she will be able to do anything she wants. She is THAT determined. (So am I.)