Family | blueberriesandgiggles

It’s a cure for Rett Syndrome. Seriously, it cannot come soon enough.

I went on Facebook earlier and saw that created a slideshow of my recent photos. It made my heart break to see them as it shows just how much my little girl has been struggling these past few weeks – things we all take for granted like breathing, eating, walking. If you’re considering any end of year giving, Lily, her Rett family and I would be eternally grateful if you gave to reverserett.org. We are also accepting prayers and positive vibes.

love,

C & L

PS we are anxiously awaiting eeg results. PPS if you ever find yourself needing to take your kid in for an extended eeg (which is a frequent occurrence for girls with Rett), I highly recommend you try to get it done in-home. PPSS if you ever have a week like Lily and I had, I also recommend that you get as much support as possible. We were lucky to have the fabulous, multi-talented uncle Carlos in town visiting us from Geneva.

I know it’s been a while dear reader. But Lily and I have been busy ladies! Starting a new school, finding a new home have been huge endeavors.

This past weekend we moved our lives from Brooklyn back to Manhattan. We will miss Brooklyn terribly. But our lives will be so much easier. We are now eight short blocks away from Lily’s new school and 30 blocks away from the office. No longer do we have hour long (or longer) commutes. We also don’t have a third bedroom, but there’s always a compromise!

No less than 12 people physically, and at least half a dozen virtually helped us girls move our home this past weekend. And many brought, or sent flowers to make our pretty new home even prettier. Thank you is an understatement!!

We are the luckiest, most loved girls in Manhattan.